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Youth With Disabilities

Four Markers of Bullying


With every person we talk to about bullying we get a different definition of what it is.  There seems to be some difficulty defining what bullying is and what it isn’t.  Norwegian researcher Dan Olweus defines bullying as when the person is

“exposed, repeatedly and over time, to negative actions on the part of one or more other persons.”

He defines negative actions as “when a person intentionally inflicts injury or discomfort upon another person, through physical contact, through words or in other ways.”

The following are markers that may help determine if an act of aggression is actually bullying or simply the result of conflict between two parties.

1. Imbalance of Power

The bully can be older, bigger, stronger, more verbally adapt, higher up on the social ladder, of a difference race, or of the opposite sex. Sheer numbers of kids banded together to bully can create this imbalance. Bullying is not sibling rivalry, nor is it fighting that involves two equally matched kids who have conflict.

2. Intent to Harm
 
The bully means to inflict emotional and/or physical pain, expects the action to hurt, and takes pleasure in witnessing the hurt. This is no accident or mistake, no slip of the tongue, no playful teasing, no misplaced foot, no inadvertent exclusion.
 
3. Threat of Further Aggression
 
Both the bully and the bullied know that the bullying can and probably will occur again. This is not meant to be a one time event. When bullying escalates unabated, a fourth element is added:
 
4. Terror
 
Bullying is systematic violence used to intimidate and maintain dominance. Terror struck in the heart of the child targeted is not only a means to an end, it is an end in itself. This is not a one time act of aggression elicited by anger about a specific issue, nor is it an impulsive response to a rebuke.

Faith or Rigidity (Help, I Have an Aspie in my Youth Group!)


Left to their own devices, children with AD will often go through life like a train on a track: one way, straight ahead, never varying, and avoiding the unexpected.  It is hard to live a life of faith without the flexibility to take-risk, something that is difficult for an Apsie.  Aspie’s need to learn how to go off-roading..  Telling the child – and showing them through many experiences over the years – that taking risks and steps of faith is a good thing and to not be controlled by fear.  Compliment the child when they are flexible, bending and changing and trying new things.

Youth workers can partner with the parents by helping these children develop skills at surviving in the world.  Plan to take them places they might enjoy, such as restaurants, on public transportation, and to age-appropriate entertainment during youth group outings but be aware, that too much pressure to read so many pieces of sensory and social information at once can be exhausting and stressful.  Plan you activities accordingly.  It is appropriate to increase your expectation as the child gets older and working in partnership with the parents makes discerning this easier for the youth worker. 

This really is an issue of teaching the Aspie how to have faith.  Faith is a gift that is given to some of us by the Spirit in a supernatural way but a child with AD may struggle with the flexibility needed to respond to Spirit’s promptings.  Walking with and modeling way to do this will reinforce in the Aspie a healthy expression of faith where one can take risks in following the God who loves them and allows them a seat at the kingdom table.

I Have An Aspie In My Youth Group!


In a setting which relies heavily on spoken and written words the Asperger’s child is at a disadvantage.  With a growing awareness of Asperger’s and its nuances youth ministries need to adjust some of their practices to make it more accessible to those who have traits of or a diagnosis of the disorder.

 There are three main interrelated general areas of functional liability in children with AD:

  1. Visual-spacial processing and sensory-motor integration
  2. Information processing and organizational skills
  3. Social skills and pragmatic language development

These areas will need to be discussed in greater detail by youth ministries as this is largely misunderstood people group that are not being effectively impacted with the Good News, not for a lack of want but likely from a lack of understanding and awareness on our part.  For the time being we’ll simply provide an overview of these three areas of difficulty and leave it up to you to contextualize in your ministry setting.

Visual-spacial processing and sensory-motor integration

Examples of visual-spacial skills include the ability to walk a narrow beam or to run while accurately throwing a ball to another person.  Most of us take these skills for granted.  You probably think nothing of the fact that you know the relative size of things.  When going to pick up a stack of books, you know that they will be heavier than the single book you just put down, and you’ll adjust your motor movement to account for that difference.  You take for granted that you can find your way from one place to another in a large building.  For youth with AD, the visual-spacial and visual discrimination skills required to accomplish all these activities are often impaired, contributing to a natural clumsiness and frequent experiences of getting lost.

Visual-spacial processing impacts learning in many ways and this has a direct impact on discipleship efforts, given that we primarily teach about our Christian faith like a classroom subject.  Students with AD find tasks such as handwriting, taking notes, and filling out forms and worksheets difficult at best and often impossible.  Given the difficulties these children have in visual spacial processing and coordinating sensory-motor integration, seemingly simple tasks are not simple and can impede their ability to grow and develop spiritually as their peers.  The problem is not one of failing to understand the task or not having the knowledge to complete the task (i.e., bible study); rather, the problem is that these youth have a specific disability that interferes with the processing of visual-motor and visual-spacial information.

Information processing and organizational skills

Processing the many forms of information that you encounter daily is dependent on a complex set of interconnections between multiple parts of the brain.  In students with AD this process is impaired, leaving them unable to easily or quickly make sense of simple day-to-day tasks (like homework or chores), or individual expectations (grooming or managing relationships).  The information goes in, but once it enters the labyrinth of the mind it becomes jumbled and their ability to organize, recall, or use the information is hindered by their cognitive processes.  Imagine trying to relate a parable of Jesus to a student with AD.  This can often appear on the surface to be oppositional in nature but upon further inspection it is simply the result of a complex cognitive process that has gone off the track.

Social skills and pragmatic language development

In the development of social skills and day-to-day language that conveys social meaning the AD child struggles.  This is partly due to the first two issues addressed above.  The student’s difficulties processing information and accurately comprehending the actions of others, along with spacial, motor, and organizational problems combine to create pain nd anxiety for the child.  Normal social interactions occur on so many levels at the same time, some overt (verbal messages) and some covert (hidden messages, tone of voice, nonverbal, gestures, body language, etc.).  Youth with AD do not fully grasp these nuances, missing social cues and implied meanings that others understand.  Aspies often take things at face value, interpreting statements literally, often missing sarcasm, subtly humor, or even threats. 

Just because a child has AD does not mean they will skip being a teenager.  The student is just as  likely to go through the normal variations of mood and personality as any teen; they just go through adolescence with more baggage.  The good news is that, developmentally, most of these teens are slower to become aware of adolescent issues of sexuality, drugs, or rebellion, but these issues will eventually come up  The social culture that our youth are a part of is difficult at best, and many of these teens are not prepared to deal with the pressures they face daily.  We have a tremendous opportunity to show the love of Christ to Aspies and their families by entering into the potential messiness of their day-to-day living and getting our hands dirty.  The message this sends when we seek to understand is that they matter.  They matter to us and more importantly, they matter to the God who created them.

Troubleshooting Guide for Difficult Students


We’ve all met those oppositional students from time to time.  Maybe they suffered from R.A.D. (reactive attachment disorder) or some extreme form of A.D.H. D. or just simply suffered from a serious conduct disorder.  Regardless, we can find ourselves in a “battle of the wills” with these students and often in the middle of small group.  The following is not an exhaustive list but serves as a troubleshooting guide for handling some of the more common problems with difficult students.

Won’t Speak To You…

  •  Try to help the adolescent realize that you have no interest in making them talk.  It’s always going to be more important that the student wants to speak that the adult is spoken to.
  • In the spirit of collaboration, invite the student to help troubleshoot the silence with you.
  • Give them permission not to speak.  This way the pressure to speak is relaxed.

 Is Disrespectful During Youth Group Meetings…

  •  Deflect or ignore the comment so it can’t be taken personally.
  • Without challenging him/her, point out their role in the deterioration of the conversation/meeting.
  • Do not use your position as leverage.  This is usually about exerting autonomy and control.  Don’t fight fire with fire.
  • Use empathy to diminish defensiveness on the student’s part.

 Tries To Pick A Fight…

  •  Try forecasting the inevitable, and troubleshooting for it together in advance, is a handy was of defusing anticipated friction between adults and students.
  • Don’t assume you know what’s driving the behavior but asking what purpose this behavior serves can generate a good discussion.

 Talks About Everyone Else But Himself/Herself…

  •  Discussing one’s friends is often a testing ground to see how the adult will react when they share something personal.  Be careful regarding what you say because you will expose your judgments and values and send a message to the student that you are either safe to share with or someone to be avoided.

 Tells War Stories…

  •  Comment on the effect that the student’s actions are having on your time together, or on you, not their purpose.
  • Point out the dilemma this kind of story telling puts you in, if you point out the negative in this story it will likely impact your relationship with the student.  If you don’t, you may be enabling the student’s sin.  Ask the student how they would expect you to respond to these stories.
  • Be patient and don’t reinforce.

Building Bridges (art of connecting pt. 1)


One of the Apostle Paul’s most famous speeches took place at Mars Hill, the Areopagus, in Athens.  He noted that they appeared to be a very religious lot of people due to the sheer number of statues they had to their gods.  In a brilliant move he identified the one statue that was for the “unknown” god and he saw his bridge.  Paul then launched into his epic sermon about the “unknown” God and described our Father to the Greeks.  He masterfully used a technique called bridge building to connect with his audience.

Kids today are completely enmeshed in pop culture.  We could, and should be aware of what is shaping our youth today and much of what we see and hear impacts them more than we know.  But I’m not simply talking about knowing what the newest Katy Perry song is blazing up the charts, what I’m talking about is building a bridge with a language of the soul.

In order to connect with young people they first have to know that you’re interested and trustworthy.  They are most likely already suspicious of adults anyway.  Too often we have an agenda for them and they know that.  It’s what drives them underground many times.  What we’re talking about here is a fundamental belief that we have something in common with the young people we love and hope to reach.

If we say things like, “Teens today are just so much more _________ than we were.” or “Kids today are just lazy and apathetic.” we create distance between us and them.  If we fail to see that they have the same longings that drove us then and drive us now there will be no bridge to walk across.  All we will have to work with is a shallow relationship and all the change we’re likely to affect is shallow compliance to an empty belief system.  We have to find common ground and that common ground should be our shared humanity.

In his ground breaking book Hurt: Inside the World of Today’s Teenagers, Chap Clark identifies six intrinsic longings of all students.  Those longings are: to belong, to matter, to be wanted, to be uniquely ourselves, for a safe place, and to be taken seriously.  Who among us can’t relate to those longings?  I work with drug addicted emerging adults.  Daily they express to me their desire to satisfy those very longings and that much of their behavior was an attempt to do just that.

After some small talk I usually ask a student where in their life do they feel they belong.  Where do they and what do they do that makes them feel like they matter?  Who takes you seriously?  Where are the safest places for you to just be yourself?  These are the questions that matter to students even if they don’t have the language to articulate them.

What the Apostle Paul did was provide an opportunity for those in the crowd to have their longings satisfied in a permanent manner by depending on the One true God.  A civilization that worships everything is an empty civilization desperately searching for meaning.  They apparently hadn’t found that in the many false gods they worshipped.

We have the same opportunity to connect the kids in our community to the very God that Paul preached about to the Greeks but first we must take to time to build a bridge by learning about them and their longings.  There is ALWAYS a bridge and it’s up to us to find it.

The Art of Connecting with Kids on the Fringe


After a workshop I facilitated on working with kids who have been abused, an elderly woman approached me to ask me a question.  She shocked me with the simplicity and depth of the question.  Here’s what she said,

“I love the kids in my community but I don’t know how to connect with the.  I want to reach out but don’t know where to start.  How do you do it?”

I can’t really remember what I told her, probably an overly simplified answer.  I never thought about it to be honest.  I just did what felt natural when reaching out to others.  Plus, I have the added benefit of being pretty simple, if I didn’t know someone I would just introduce myself and talk to them.  It wasn’t until I talked to my wife that she opened my eyes to the idea that for some this comes easy.  For others though it is an anxiety inducing event.  Imaging, you long to reach out to this generation, a generation that is slipping through the cracks right before your very eyes, but the words escape you when needed.  You don’t know how to connect beyond a simple “Hello, how are you today?”

My wife and I talked about this for several hours over the next few days.  We explored what is involved in connecting with these kids that seemed so different from us.  Asking me how I connect with fringe kids is like asking a fish to describe water.  I spend so much time out there on the fringe that it has become normal.   I have developed, over the years, skills to navigate those waters.  But many others haven’t and don’t know where to start.  That’s what this series in aimed at doing, equipping willing adults to connect with a generation where the gap is ever increasing.  Our thoughts are not exhaustive and it is my hope that other voices will chime in with their experience, wisdom, and insight.

We will cover the following over the next several weeks:

  • Bridge Building – How to make that initial contact in a meaningful way?
  • Cultivating a spirit of learning – Curiosity is key in connecting with others.  How do we foster a spirit of curiosity?
  • Law of the Lid – We will explore our preconceived expectations of these fringe kids and how they impede our interactions with them.
  • The Culture of an Individual – Each student is a culture unto themselves.  We will discuss how to explore that culture as it relates to effectively ministering to them.
  • Doing away with my Agenda – How my agenda actually breeds a distrust that is nearly impossible to overcome.
  • What is our Purpose of our Interactions – Moving from meaningless to Meaningful interactions.
  • Checking our Personal Bias at the Door – Often our personal biases impact how well we connect with others, especially those different than us.
  • Finding Common Ground – Discovering shared experiences, dreams, fear, and failures.
  • What is being said without Words – What story are they telling with their clothes, hairstyle, and nonverbal communication.

I hope you will contribute to this discussion because at the end of the day it will close the gap between us and the adolescents that reside in the world beneath…

Disabled Youth and Youth Ministry Gatherings (pt. 6 – marketing to disabled youth and families)


It is not enough for a youth ministry program to simply be ready to serve the Disabled Youth Community.  Rather, the ministry should be proactive in making the Disabled Youth Community aware of it’s accessability.  It is hoped that any ministry targeting  youth with disabilities will be in contact from the outset with any known families or organizations serving them. It would not be a bad idea to contact such agencies to present your willingness to provide ministry opportunities for students and families that are interested, thereby providing a person contact for any of the referring staff.  Of course, the best promotion for your youth group are students with positive experiences of interacting with your youth group. 

Outreach

Outreach material should assure potential students that your ministry gatherings are able to provide accessible, age appropriate youth ministry experiences for persons with a disability.  In addition to stating that accommodations and alternative communication strategies can be provided as needed, you may wish to assure the students with disabilities that they are welcome by including the universal accessibility symbol on your literature or website.

 

 

 

 

 

 

 

 

 

 

There are many facets of an outreach ministry that can be modified to accommodate the needs of youth with disabilities:

  • Tailor marketing materials, including signage, messages, brochures, website, and yellow pages ads to people with disabilities.  Have all such material state that accommodations are available.
  • If the ministry is committed to serving persons who are deaf or hard of hearing, have a dedicated line for a TDD, and have that TDD number printed on all outreach communications.
  • Provide a sign interpreter if one is available.
  • Create and use mailing lists of organizations that serve people with disabilities.
  • Conduct specialized training and presentations (include students with disabilities in the creation of) for adult volunteers and student leaders.
  • Adapt conference trips, camps, retreats, etc. with the disabled youth in mind.
  • Recruit students with disabilities to the student leader team or hire an intern/staff with a disability.
  • Work with family and support agencies (if necessary) to determine style of learning for students with cognitive impairments.
  • Link with particular disability groups for their expertise and to create staff training opportunities.
  • Be conscious of intersections (e.g. Latino youth who is gay and disabled)

Every ministry should expect to have students for whom they will have to make accommodations, but many of these accommodations will not require extensive or expensive changes.  Perhaps even more importantly, making accommodations and adapting your ministry for youth based on their functional limitation should create and environment in which they can be restored to community.  Often these disabilities carry with them stigmas that separate and isolation occurs.  God’s purpose for all of us is to participate in the restorative activity of God in this world.  This is just one of many ways we can do that.

 

Disabled Youth and Youth Ministry Gatherings (pt. 5 – physical disabilities)


As a general modification to the typical youth ministry gathering, it is necessary to accept different types of body positioning for people with disabilities – some people may need to stand up or move during group, and this activity should not be considered rude.  Youth workers may have to keep group meetings short or schedule frequent breaks to help people who lack physical stamina and make allowances for increased travel time to gatherings for people who use wheelchairs or rely on public transportations. 

Sometimes students with spasticity or other motor problems, such as those associated with quadriplegia, have voluntary or involuntary movements that are sudden and unusual for people not familiar with them.  The youth worker should ensure that group members are not distracted by these movements and understand that they are a normal manifestation of some disabilities.

Youth workers are weary, and rightfully should be, of personal boundary issues (e.g. the side hug with members of the opposite sex).  With a student with a physical disability that sense of what is proper may need to be modified for some in need of assistance, such as adjusting a wheelchair, etc.  When the proper course of assistance is not apparent, ask the student of family for guidance. 

The relative height of the youth worker and disabled student, when seated and talking, may also be an important consideration when working with a student who has a physical disability.  Disproportionately great differences in seated height can hinder communication, especially relative to body language.

If a student with a disability has limited transportation options, the creative youth worker will find ways to minster to them and their family.  Often visiting them at home or at an alternative site is will allow the youth worker to gain valuable insights into a person’s life and ultimately facilitate effective ministry.  It also communicates to the student that they are valued enough to make the effort (we’re hopefully doing this to all students).  Going to the residence of a student with disability also provides invaluable information about that student’s lifestyle, interests, and immediate environmental challenges.

Lastly, we must take into consideration not only the physical limitations the student might have, such as; playing certain games or traveling over certain terrain, but also the psychological and social consequences of the disability.  Issues that may need to be addressed can include impulsivity, social isolation, low self-awareness relative to medical or psychological needs, anger, feelings of hopelessness, or outright fear at living life with the disability.  These issues are hardly new to a seasoned youth worker, nor are the unique to persons with disabilities; however, a disability may exaggerate the severity of these conditions or their impact on your ministry efforts.

Disabled Youth and Youth Ministry Gatherings (pt. 4 – cognitive disabilities)


Accommodations for students with cognitive impairments can include the use of visual cues, mixed media, and the repetition of major points.  Experiential exercises is often effective for a young person with intellectual or cognitive disabilities.  Role-playing works well for a person with developmental disabilities – the process of playing a role themselves helps them to internalize it.

The use of verbal and nonverbal cues will help increase participation and learning for students with cognitive disabilities and make the group run more smoothly for all.  People with cognitive impairments are often impulsive because they lack normal feedback mechanisms.  They do not wish to be impulsive, but lack the ability to regulate this behaviors for themselves.  Therefore, youth workers and peer students should try to provide external cueing until the student can internalize it.  The youth worker and the youth with a disability can design the cues but should keep them simple, such as touching the person’s leg and saying a trigger word (e.g. “interrupting”).  If cues are used in a setting where other people will observe them, alert the group to the cue in a matter of fact way as you would alert them to a use of a dog or the space needed for a wheelchair.  Cueing can be useful for people with other types of disabilities and for other purposes as well.

For students with Ad/HD, it is helpful to establish a maximum length of time, for example, 10 minutes, for presentations.  Another modification to the group setting, which is beneficial for those with developmental disabilities or brain injury (as well as for other students), is to set aside 10 minutes at the end of the meeting to reinforce what was taught during the group.  Such discussion ensures that content is retained and promotes active rather than passive learning.  Some students with cognitive disabilities may have problems with time management and will need to be reminded of group meeting times with an email, call, or text.

It may be necessary to make changes to group learning activities in order to accommodate students with cognitive disabilities.  The use of alternative media to replace traditional learning tools, such as writing and reading, can be very useful.  An individual who has an expressive language disorder may be unfairly judged as uncooperative in participating in group discussions.  However, given the opportunity to express himself or herself through artwork, they may be able to communicate quite a bit.

Mixed media can be incorporated in other ways as well.  As a group learning exercise, students could work together to “draw the narrow way” depicting all the potential stumbling blocks they might expect to encounter as they go back to school.  Students can create memory books or journals (to capture the content of each bible study), or flash cards (or words or pictures) to jog memory of previously taught stories or lessons.

Youth workers should not assume, however, that one student’s experience will be understood by another, particularly in the case of a student with a cognitive disability.  There may be a great deal of shared experience, but the student with a disability may not understand it unless it is made specific and pertinent to their own life.

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